Monday, April 1, 2013

From Marissa: In Anticipation of the Coming Weekend


I’m excited for the coming weekend on so many levels. 

I first conceived of running a distance longer than 26.2 miles to fundraise for lymphedema, while running the Big Sur Marathon, last April.  A runner/writer whose blog I follow has written about dedicating each mile of a marathon to people in her life.  So, when I was tired in high mileage along gorgeous Highway One, I thought about some of the many people for whom I’m grateful, and about the strength they demonstrate.  Around mile 19, as I rounded a particularly windy and foggy outcropping, the idea came to me that I could run an ultramarathon to raise money for lymphedema research.

The couple of months prior to the race had been tough as, through many consultations with some of the nation’s leading experts, it was confirmed that the swelling in Kati’s leg is lymphedema.  It frustrated and confused me that there is no known cure for this condition.  Thus, the prospect of offering something of which I’m capable—running—as a means to support research excited me.  And, to me, running a 50k (31.07 miles) made/makes perfect sense.  I’ve run marathons, but I’ve never run further.  Now, I want to go longer, and dig deeper, to express my belief that a cure for lymphedema is possible and that I am committed to help moving toward it.  

I understand that, likely, the cure won’t be discovered tomorrow.  Nor the next day, nor the day of the race, nor the day after that.  Perhaps there will still be months, even years, of research and trials.  But I believe that better treatments and, ultimately, a cure for lymphedema are possible.  And, as I wrote in my second blog, Accretion, I also believe in the cumulative efforts of many people.  Together, we will help to propel medical research of lymphedema toward a cure.  Because, in our efforts and our giving, not only are we sponsoring research at the Lymphatic Research Foundation, but we are also making a statement, as a collective: a lot of people care about finding a cure for lymphedema.  

Almost exactly one year since the notion of a run for lymphedema occurred to me, I am so looking forward to a full weekend of lymphedema awareness, through the Hike + Run to Cure Lymphedema.  Next Saturday (rain or shine!), a group comprised of friends and family will hike in the Oakland Hills.  And on Sunday, Christine and I will run in the Grizzly Peak 50k, in Berkeley. In the two months that we’ve been fundraising, a cohort of 120 people have raised over $11,570 to support lymphedema research.  It brings me so much joy that we’re able to send this sizable contribution to the Lymphatic Research Foundation, where postdoctoral fellows are working to better understand this mysterious and under-researched condition.  I’m also really excited about the fact that this means that the word is spreading about lymphedema. 

This is an exciting time and, as the Lymphatic Research Foundation says, “There has never been a time of greater optimism in the field of lymphatic research.”  Thank you and I hope to see you next weekend!

With love,
Marissa

Donate here: http://lymphatic.donorpages.com/LRFFriendsandEvents/lymphedemarun/

On the Grizzly Peak course!

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